“You have about six months without a viable treatment option”. I heard these words close to 15 years
ago - and again this week. I turns out the “non-event” tumor that the
Doctors found on my bladder is, indeed, quite the event. It has permeated the interior wall of the
bladder and has made itself at home.
Under “normal” circumstances, the specialists would schedule surgery to
remove the tumor, and possibly part of the bladder, and call it a day. However, it’s not very safe for me to have
surgery that involves general anesthesia.
The last time we tried that, I had a heart attack and I’m not really up
to doing that again!
So, we’re trapped at this crossroads of what the specialist sees
as the best course of action, what the cardiologist sees as a VERY bad idea,
and what my Doctor deems appropriate (or not) for me. If we play “status quo”, the most likely
scenario is bladder failure and gestation and spreading of the cancer. Pair
that with the other organs that have gone on strike, and it’s just a matter of
time.
However, my Doctor is a bit more stubborn than that. “This is NOT an option” she told the
specialists “so get off your asses and FIND something that will work.” Have I mentioned how much I adore my primary
Oncologist? She has an extensive
knowledge of the medical field, “friends in high places”, and the most amazing
will to help me survive – and more importantly - LIVE. Actually, the whole scene was quite entertaining
to witness. Picture this; a very petite
man (i.e., the specialist that gave me the 6 months) sitting in a chair. All prim and proper with his glasses and his
spotless white coat. Being very matter
of fact – which I very much appreciate – about the current situation. He stated all the facts and summed up
everything very well. “If we can’t do surgery to remove the cancer,
it’s going to get aggressive and start spreading. If we can’t complete a cycle or two of
chemotherapy or radiation because your system can’t process it, there is no stopping
it. Therefore, without a viable
treatment option, you’ll live about 6 months.
I highly suggest you looking into End of Life options including
extensive pain management and Hospice.”
He’s a great doctor and he’s doing exactly what he should be doing.
Enter: My
Doctor. She’s 6’5’’ and has a very
strong voice. She strides over to him
and leans over him – towering over him so his neck is craned way back. She speaks so loudly that I’m pretty sure people
in Arkansas heard her. “That is NOT an option. She hasn’t fought this hard, for this long
just for YOU to come in and say “sorry I refuse to think out of the box so buy
a f@%King casket . *yes, those are her
words exactly* You’d better get on the damn phone with EVERYONE you know and
get this figured out or you’re going to face something you’ve never wanted to
deal with.”
I sat back and just smirked – this isn’t the first time I’ve
seen my Doctor do this. When she was done,
she turned around to me and just smiled.
My first response was “Bloodview – 6pm Friday or Saturday night. PLEASE. .. let me put you in a set.” I’ve
been trying to get her to come up and act for years now, still no luck. L
Needless to say, it’s been quite a rough week for me. I have total faith in my Doctor and her team
to get me through just about anything.
However, the fact of the matter is, the body can only take so much, and
eventually it’s not going to want to work anymore. I don’t foresee that happening anytime soon –
I have too much yet to do.
When I was first diagnosed, nearly 15 years ago, I told
myself I had one goal. To see my little
girl graduate from High School. That
goal is what kept me going through the treatments, the hair loss, the weight
loss – and gain – and loss – and gain, the pain and everything else. I saw her graduate and am continuing to witness
her grow into a mature, responsible, incredible young woman.
I have a new goal – and that’s to be there when she gets
married. It may not happen for many,
many years; and that’s fine with me. She’s
happy and healthy and gives me something to live for every single day. This new goal is set and I WILL see it
through. When Sami finds that perfect
person that she wants to spend the rest of her life with; I want to be there
for the dress fittings, the cake tastings, and the tears during the
ceremony. I want to watch her toss her
bouquet, dance with her Husband, and celebrate with her family and
friends. I will be there when they drive
away to start their new life together.
And who knows, maybe in the mean time; I’ll find my own piece of
happiness with someone?
So, listen up kittens.
Life is shorter than you expect; it goes quicker than you realize. We can all be taken at any given time – so don’t
waste it on hate. Don’t waste your life
on sorrow, regret, or unhappiness. Live
your life like it’s your last day; showing the people in your life how much you
love them, and what they mean to you.
Experience joy and share it with others.
Make the world a better place by striving to be a happy and positive
force in the world. Then, when your end
of days arrives, you will leave with zero regrets. Trust me, I know.
2 comments:
that would be wonderful. sammi will make an amazingly beautiful bride. i'm so glad your doctor is such a warrior. i love her.
i mean, it's already a given that you're a warrior too, LOL. but that she fights so hard for you is awesome.
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